{First Web Posting ~ June '98 }
See Also "Family Update"
Jacob
is a very loving and bright young little boy - the first child of Miqelle F. DeMeis
& Robert G. Dullea.
He was born (2/15/97) in Fort
Collins which
makes him a native
Coloradoan - a trait
considered a rarity by many in the state. In May of 1998 he was diagnosed with
having a rare genetic
disease
known as Niemann-Pick
Type C
(a cholesterol metabolism disorder). At that time, Miqelle,
who is originally from
Pennsylvania (North
Wales), was a
social administrator at a foundation
which supported young adults with special needs, while Robert,
a Connecticut native (East Lyme),
was completing his doctoral
candidacy in the field of cancer
research (radiation
oncology) at Colorado
State
University.
Jacob is also the first grandchild of
Francene & Mike DeMeis (North Wales, PA) and Jeanne &
Bob Dullea (Niantic, CT via
Salem, MA).
Early in 1999 Jacob's dad received his Ph. D. degree and accepted a cancer research position at Pfizer Inc in Groton, Connecticut. The family now resides in the quaint little town of Pawcatuck which is a neighbor of the renown seaport village of Mystic, CT.
Jacob has adapted remarkably well to his change in environment...not surprisingly as he now gets a chance to spend a lot of time with many more family members (who reside primarily on the East Coast). Among his favorite interests are learning & playing with his many friends at the St. Mark's Play Group as well as swimming lessons (he really loves to splash! - Click Here for Photo) at the Toddlers Swim Class (both located in Mystic). Jacob is also a VERY BIG FAN of Barney & the Teletubbies. Although his affliction has significantly delayed the development of his motor & verbal skills, Jacob continues to show good progress as a result of his weekly physical & speech therapy lessons.
Early in 1999 Jacob's dad received his Ph. D. degree and accepted a cancer research position at Pfizer Inc in Groton, Connecticut. The family now resides in the quaint little town of Pawcatuck which is a neighbor of the renown seaport village of Mystic, CT.
Jacob has adapted remarkably well to his change in environment...not surprisingly as he now gets a chance to spend a lot of time with many more family members (who reside primarily on the East Coast). Among his favorite interests are learning & playing with his many friends at the St. Mark's Play Group as well as swimming lessons (he really loves to splash! - Click Here for Photo) at the Toddlers Swim Class (both located in Mystic). Jacob is also a VERY BIG FAN of Barney & the Teletubbies. Although his affliction has significantly delayed the development of his motor & verbal skills, Jacob continues to show good progress as a result of his weekly physical & speech therapy lessons.
Jacob | Family Background | The Disease
Jacob's Album | Campaign Supporters | Jakey's Brothers
Ara Parseghian Medical Research Foundation | National Niemann-Pick Disease Foundation